The Light at the End of the Tunnel

We decided to start scouring the internet searching for information that we needed badly and no one could provide.... A family member found a YouTube video called "The Birth and Death of a Hemangioma" that lead us to the Vascular Birthmarks Foundation website.... from there we found a tool which helped us find Cincinnati Children's Medical Center Hemangioma and Vascular Malformations Center. This past Friday she had surgery performed by Dr. Roshni Dasgupta to have her hemangioma excised. After surgery, we had our Kaylee back...

The day of surgery....

The day after surgery back at home....

Two days after surgery... This past Sunday......

What the doctors don't tell you...

A few days old... she had a little harmless red spot on her forehead...

Five months old... it has grown to 1 in by 1.2 in and become severely ulcerated and is now infected... with MRSA...This picture was taken two days before I had to rush her to the emergency room due to the ulceration opening up...

Plastic Surgeon Here We Come

Her pediatrician thought the best thing to do at this point would be to get connected with a local plastic surgeon and have her hemangioma monitored throughout its development. We agreed and scheduled an appointment.

At the appointment they measured the hemangioma and took pictures of it for her file and then got the news we didn't want to hear... the doc knew little to nothing about these and he pretty much admitted that he wouldn't touch it with a ten foot pole. We were going to have to live with this for a long time....

Hello Hemangioma....

Hello Hemangioma... By the time that Kaylee had been home for two weeks, we could definitely tell that something was wrong. Our precious little baby who came home with a small "bruise" on her forehead was now growing a large red lump on her head. It seemed as though it was growing rather fast and I didn't know "strawberry" birthmarks puffed out like this was did. We were concerned so at her first visit to her pediatrician we asked him about it. He explained to us that was Kaylee had was called a hemangioma or vascular birthmark. He said not to worry about it because she couldn't feel it and it would just go away in a few years. We felt as though our questions had been answered and with our fears assuaged we took our baby back home and continued on as though the birthmark didn't exist.

Introduction - Meet Kaylee Mae Fish

Meet Kaylee Mae Fish born December 1, 2009 weighing in at 6 lbs 3 ozs. She was born a gorgeous little girl (just like every other little girl)

without a care in the world. When she was first born we had no idea of the trouble that awaited us in the very near future. Something would happen that would change all our lives forever.